Physical Activity Levels of Parents of Children With Cystic Fibrosis- (PHACTS-CF)

NHS Foundation Trust

Status: Not yet enrolling

Conditions: Cystic Fibrosis in Children

Treatments: Other: No intervention will be provided

Study type: Observational

Funder types: Other

Identifiers

NCT05493137

A096376

Details and patient eligibility

About

This study will investigate if parental physical activity levels, assessed by providing a physical activity questionnaire to parents of children aged 6-16 with Cystic Fibrosis (CF), is associated with their child with CF's physical activity levels. Children's activity levels will be taken from electronic records where a questionnaire is routinely given at annual reviews to analyse this. Parental activity levels will also be compared against adherence to nebulisers as a proxy for adherence to treatment, this data is again in the electronic records of patients and is collected at annual reviews.

Enrollment: 30 estimated patients

Sex: All

Ages: 5 to 16 years old

Volunteers: No Healthy Volunteers

Inclusion criteria

1. Parents of Children aged 5-16 years.
2. Under the care of Cambridge University Hospitals CF team
3. Confirmed Cystic Fibrosis diagnosis
4. Uses an ineb as main nebulizer delivery device.
5. Parental/guardian permission (informed consent) and if appropriate, child assent.

Exclusion criteria

1. Parents of CYP diagnosed with a CF screen positive inconclusive diagnosis (SPID).
2. If not yet doing lung function.
3. If has any other self-identified physical disability which may limit physical activity.