Physiotherapy Approach for Susac Syndrome

Rehabilitation Centre Zivot

Status: Completed

Conditions: Susac Syndrome

Study type: Observational

Funder types: Other

Identifiers

NCT06349603

S2023

Details and patient eligibility

About

Susac's syndrome is a rare autoimmune disorder characterised by a triad of encephalopathy (brain dysfunction), branch retinal artery occlusion (loss of vision) and sensorineural hearing loss. This study presents the case of a patient undergoing intensive physiotherapy intervention following an injury, focusing on assessments such as volume and range of motion measurements, manual muscle tests, and pain intensity evaluations using various scales.

Full description

The patient, aged 17, initially presented with severe limitations in mobility, diagnosed with Susac syndrome. Requiring assistance to walk even short distances due to fear and insecurity. Through a structured physiotherapy program spanning several months, various assessments were conducted, including manual muscle tests and circumference measurements. Significant improvements were observed for muscle function, upper and lower limb circumferences, and performance in mobility tests.

Enrollment: 1 patient

Sex: All

Volunteers: No Healthy Volunteers

Inclusion criteria

• Confirmed diagnosis of Susac syndrome.
• Willingness and ability to participate in a 12-week intensive physiotherapy program.
• Stable medical condition that allows participation in physiotherapy without significant risks.
• Ability to provide informed consent for participation in the study.

Exclusion criteria

• Presence of severe comorbidities or medical conditions that would interfere with participation in physiotherapy or confound the study outcomes.
• Inability to comprehend or follow the instructions for physiotherapy exercises.
• Pregnancy, as certain physiotherapy modalities may not be suitable during pregnancy.
• Any other condition or circumstance that, in the opinion of the investigator, would compromise the safety or validity of participation in the study.