Pilot Study of an Advance Care Planning Intervention Among Persons With Dementia
Status
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Details and patient eligibility
About
Advance care planning allows people to have their wishes taken into account even in the advanced stages of the persons' condition and at the end of life when the person may be unable to communicate. However, a recent review found an absence of high-quality guidelines for advanced care planning in dementia care. Since few evidence-based resources exist, the investigators propose a study to generate, refine, and pilot test an education information sheet designed to promote advanced care planning among families of persons with dementia.
Full description
To determine the feasibility, acceptability and preliminary efficacy of an education information sheet to promote advance care planning among family members of persons with advanced dementia in long-term services and support facilities.
Introducing an education information sheet containing prognosis and outcomes will be feasible, acceptable, and increase self-efficacy and do-not-hospitalize decision preferences among family members of persons with advanced dementia.
Enrollment
Sex
Ages
Volunteers
Inclusion criteria
- Family member of a person with a diagnosis of dementia (any type)
- English-speaking family member
- Family member of a person with dementia admitted to a nursing home
Exclusion criteria
- Inability to understand/read English
- Advance directive already in patient chart
Trial design
Primary purpose
Allocation
Interventional model
Masking
13 participants in 2 patient groups
Trial contacts and locations
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Central trial contact
Natalie Disher, BA; Lucas Rubim, BS
Data sourced from clinicaltrials.gov
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