Policy on Optimal Epilepsy Management (POEM)

Northern California Institute of Research and Education (NCIRE)

Status: Unknown

Conditions: Epilepsy; Seizure Disorder

Treatments: Behavioral: PatientsLikeMe.com

Study type: Interventional

Funder types: Other; Industry; Other U.S. Federal agency

Identifiers

NCT01762215

POEM (Other Identifier)

Details and patient eligibility

About

This study examines the use of an online social media platform (PatientsLikeMe) to assist Veterans with epilepsy. The hypothesis is that the online social media platform, PatientsLikeMe, will improve selected patient-reported outcomes on perceived self-management skills for patients who engage in the website functions.

Enrollment: 200 estimated patients

Sex: All

Ages: 18+ years old

Volunteers: Accepts Healthy Volunteers

Inclusion criteria

• US Veteran
• Epilepsy (Seizure Disorder)
• >18 years

Exclusion criteria

Trial design

200 participants in 1 patient group

PLM

Experimental group

Description:

Upon consenting to the study, participants will be asked to register an account on PatientsLikeMe; no personal identifiers will be required. As part of registration patients create a user name and password for the website and share their email with PatientsLikeMe. Participants will be asked to provide a set of demographic variables and to complete a survey assessing elements of self-management, disease knowledge, social support, and quality of life. Paticipants will then use the PatientsLikeMe website for 6 weeks as much as they wish. After 6 weeks the participants are asked to complete a second survey.

Treatment:

Behavioral: PatientsLikeMe.com