A Portal-based Advance Care Planning Intervention Among Community-Dwelling Persons Living With Cognitive Impairment (Portal-Voice)

Wake Forest University (WFU)

Status: Enrolling

Conditions: Advanced Care Planning

Treatments: Behavioral: Standard of Care for Advance Care Planning; Behavioral: Advance Care Planning Tool - ACPVoice

Study type: Interventional

Funder types: Other; NIH

Identifiers

NCT06509373

IRB00112143

5K23AG070234-03 (U.S. NIH Grant/Contract)

Details and patient eligibility

About

The purpose of this research is to examine the feasibility of using a patient portal based advance care planning (ACP) tool to improve ACP discussions and documentation in persons living with cognitive impairment in outpatient primary care.

Full description

The goal of this study is to explore whether sending a portal-based ACP tool (called ACPVoice) paired with a motivational message within the patient portal before a routine primary care physician visit can improve ACP discussions and documentation within the electronic health record among persons living with cognitive impairment in outpatient primary care.

Enrollment: 300 estimated patients

Sex: All

Ages: 65+ years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• Age 65 years old and older
• Diagnosis of recognized or probable mild cognitive impairment or mild dementia or elevated eRADAR score
• Completed visit with their primary care provider (PCP) within the past 12 months and have upcoming PCP visit in next 6 months
• Have an active patient portal account

Exclusion criteria

• Lives in a long-term care facility
• Severe vision impairment/blindness (as they need to be able to read portal messages)
• Enrolled in hospice
• Lacks decisional capacity as deemed by PCP

Trial design

Primary purpose: Health Services Research

Allocation: Non-Randomized

Interventional model: Single Group Assignment

Masking: None (Open label)

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300 participants in 2 patient groups

ACPVoice Intervention

Experimental group

Description:

Community-dwelling persons living with cognitive impairment aged 65 and older with known or probable mild cognitive impairment or dementia or elevated eRADAR score (with decision-making capacity), who are affiliated with the Atrium-Wake Forest Baptist Health , have a primary care physician at one of the participating sites, and have an active patient portal account.

Treatment:

Behavioral: Advance Care Planning Tool - ACPVoice

Standard of Care

Active Comparator group

Description:

Community-dwelling persons living with cognitive impairment aged 65 and older with known or probable mild cognitive impairment or dementia or elevated eRADAR score (with decision-making capacity), who are affiliated with the Atrium-Wake Forest Baptist Health, have a primary care physician within the Atrium-Wake Forest Baptist Health Network, and have an active patient portal account.

Treatment:

Behavioral: Standard of Care for Advance Care Planning