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About
The specific aims for this study are:
Full description
For subjects in longitudinal follow up, this study will:
Collect detailed clinical and demographic information about each subject at enrollment and during follow up, Obtain and store imaging data from the subject at entry and during follow up, Obtain and store serum, plasma and urine samples from the subject at entry (after matching) and during follow up, Obtain and store DNA from the subject, Obtain and store DNA from the biological parents, Obtain and store quality of life data from the subject and parents at enrollment and during follow up
Enrollment
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Inclusion criteria
Children aged 3 through 12 years of age at time of enrollment diagnosed with Cystic Fibrosis and pancreatic insufficiency
Enrolled in the CFF registry study or Toronto CF Registry
CF defined as sweat chloride of >60 mEq/L on one occasion (using the value in the CF registry) or two disease-causing mutations of CFTR with evidence of end organ involvement.
Pancreatic insufficient defined as one of the following:
Exclusion criteria
774 participants in 4 patient groups
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Data sourced from clinicaltrials.gov
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