Pressure Relief Education and Training for Wheelchair Users

Wake Forest University (WFU)

Status: Completed

Conditions: Pressure Area

Treatments: Behavioral: education and training

Study type: Interventional

Funder types: Other

Identifiers

NCT06252597

IRB00107536

Details and patient eligibility

About

There can be barriers for clients with progressive disorders who are power wheelchair users and their caregivers that prohibit them from performing pressure relief. Clients may struggle with consistent performance of pressure relief and may not recall the importance, have methods to perform, or be able to perform due to weakness or other disease changes.

Full description

Study the population of power wheelchair users with progressive disorders at the Neurology Specialty Care - Edgehill, Carolina Neuromuscular Amyotrophic Lateral Sclerosis (ALS)/ Muscular Dystrophy Association (MDA) Center to identify barriers, provide potential solutions, and provide education and training to both increase knowledge and understanding of pressure relief options and processes as well as to overcome these perceived barriers amongst the clinic population. Current adults of the Neurology Specialty Care practice who are complex power wheelchair users will be eligible for this project as an extension of usual care.

Enrollment: 9 patients

Sex: All

Ages: 18+ years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• Adult 18 years or older
• Diagnosis of a progressive disorder (amyotrophic lateral sclerosis (ALS), multiple sclerosis (MS), muscular dystrophy (MD), spinal muscular atrophy (SMA), Parkinson disease (PD)
• Current clinic client at the Neurology Specialty Care Edgehill clinic
• Currently using a complex (group 3) power wheelchair with power positioning of at least tilt/recline
• Currently sitting in the chair at least 2 consecutive hours/day

Exclusion criteria

• Dementia as noted by Medical Doctor / speech-language pathologists (SLP) in medical records
• Inability/unwillingness to control wheelchair power features (client)
• Unwillingness to be monitored, educated, trained by study staff
• Uses other mobility devices indoors (scooter, basic power wheelchair) more than complex power wheelchair
• Further exclusions may be added in future protocol versions

Trial design

Primary purpose: Supportive Care

Allocation: N/A

Interventional model: Single Group Assignment

Masking: None (Open label)

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9 participants in 1 patient group

education and training

Experimental group

Description:

After implementation of the pre-interview and determination/performance of necessity, education and training at a regularly scheduled occupational therapy clinic visit will be performed with handouts, verbal education, hands-on training, and video training.

Treatment:

Behavioral: education and training