Profiling Children and Youth With Cerebral Palsy in Relation to Feeding and Nutrition (Purple-N)
Status
Conditions
Details and patient eligibility
About
HCPs will complete questionnaires about their patients with Cerebral Palsy (CP) and invite parents/caregivers of these patients to fill in questionnaires as well. Questionnaires include questions on individualized treatment, nutritional profile and management, and patient characteristics.
Full description
Coordinating health care professionals (HCPs; e.g. paediatric neurologists, physiotherapists) in different centres across different countries will be asked to participate in this cross-sectional study.
A) for the HCP to fill out a questionnaire about their CP child, related to general subject characteristics, motor function, co-morbidities, type of therapies, anthropometry, feeding mode and nutritional status; and B) for parents (/legal representatives) to receive and fill out questionnaires about their CP child and themselves, related to general subject characteristics, motor function, co-morbidities, type of therapies, anthropometry, feeding mode and nutritional status, participation and (their own) quality of life.
If parents (/legal representatives) agree to "A)", but not "B)" then a subject will still enter the study, but without the parental assessment.
Enrollment
Sex
Ages
Volunteers
Inclusion criteria
- Confirmed diagnosis of Cerebral Palsy
- Age<18 years
- Have visited the HCP within the last year
- Written informed consent provided by parents/legal representatives according to local law
Exclusion criteria
- Neurodegenerative diseases
- Acute infections: meningitis, encephalitis or poliomyelitis
Trial design
499 participants in 1 patient group
Trial contacts and locations
Loading...
Data sourced from clinicaltrials.gov
Clinical trials
Research sites
Resources
Legal