Prognostic Factors , Morbidity and Mortality in Patients With Neuromuscular Disorders Admitted in ICU

Centre d'Investigation Clinique et Technologique 805

Status: Unknown

Conditions: Muscular Dystrophies; Intensive Care (ICU) Myopathy

Study type: Observational

Funder types: Other

Identifiers

NCT02685215

1912677

Details and patient eligibility

About

Muscular dystrophies are neuromuscular disorders with disability. Restrictive pulmonary failure and cardiomyopathy affect prognosis.The investigators aim to establish predictive factors for mortality and morbidity in Intensive care unit (ICU ) and to describe the long term follow up after ICU discharge.

Full description

Muscular dystrophies are neuromuscular disorders with disability. Restrictive pulmonary failure and cardiomyopathy affect prognosis. Little is known about morbidity and mortality of patients with muscular dystrophies admitted in intensive care unit (ICU).The investigators aim to describe the spectrum of patients with muscular dystrophies admitted in ICU , to establish predictive factors for ICU mortality and morbidity and to describe the long term follow up after ICU discharge.

Enrollment: 800 estimated patients

Sex: All

Ages: 18+ years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• admitted in ICU
• Duchenne muscular dystrophy
• Becker muscular dystrophy
• LGMD
• Steinert disease
• Pompe disease
• FSHD
• metabolic disease
• mitochondrial disease
• congenital myopathy
• others neuro-muscular diseases

Exclusion criteria

• brain injury
• minor patient