Prospective Evaluation of the Results of Multidisciplinary Follow-up After a Transitional Consultation for Esophageal Atresia (TAO)

Assistance Publique - Hôpitaux de Paris

Status: Enrolling

Conditions: Esophageal Atresia

Treatments: Other: Follow-up of the patients during 3 years

Study type: Observational

Funder types: Other

Identifiers

NCT06860919

APHP240714

Details and patient eligibility

About

A transition consultation for adult patients with esophageal atresia, involving medical and paramedical stakeholders, was set up at Hôpital Saint-Louis in 2020. The aim of this initiative is to: 1. initiate adult medical, psychological and social follow-up; 2. empower these adults in their future care; 3. establish a personalized follow-up schedule. This project is the first to focus on post-traumatic stress disorder (PTSD) in young adults with esophageal atresia. A 3-year analysis of the somatic and psychosocial variables analyzed will confirm the validity of this initiative, and define its optimal contours for improving these patients' quality of life as adults.

Enrollment: 50 estimated patients

Sex: All

Ages: 18 to 30 years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• Patients with esophageal atresia
• Aged 18 to 30
• Followed at Hôpital Saint Louis
• Informed and not opposed to the study
• Patients affiliated to a social security scheme

Exclusion criteria

• Inability to answer questionnaires
• Patients under guardianship
• Patients under AME (Aide Médicale d'Etat in France)

Trial design

50 participants in 1 patient group

Young adults with esophageal atresia

Treatment:

Other: Follow-up of the patients during 3 years