Prospective Study on Quality of Life in Patients With Intracranial Germ Cell Tumors
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About
The primary purpose of this study is to characterize the quality of life in patients with intracranial germ cell tumors. Those findings can contribute towards a better understanding of the impact of the current treatment strategy on survivors.
Full description
The characteristics of the quality of life in patients with intracranial germ cell tumors are far from understood. The main reason is the rare occurrence of the disease. As a result, most findings came from retrospective studies in which only dozens of patients participated. Generally, patients with intracranial germ cell tumors have a good prognosis, especially those with germinoma.
Over 90% of patients with germinoma will survival after ten years of follow-up. Thus, the quality of life in long-term survivors is of concern. The investigators designed this prospective study to address this issue to understand better the characteristics of the quality of life in patients with intracranial germ cell tumors and provide information for optimizing the current treatment strategy.
Enrollment
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Inclusion criteria
- 3 years ≤ age ≤ 21 years
- Newly diagnosed primary intracranial germ cell tumors
- Written informed consent
Exclusion criteria
- Relapsed disease
- Poor compliance
Trial design
150 participants in 1 patient group
Trial contacts and locations
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Central trial contact
Bo Li, MD, PhD
Data sourced from clinicaltrials.gov
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