Psycho-social Impact of Amelogenesis and Dentinogenesis Imperfecta (AiDiBull)

Toulouse University Hospital

Status: Completed

Conditions: Dentinogenesis Imperfecta; Amelogenesis Imperfecta

Treatments: Other: Questionnaires

Study type: Observational

Funder types: Other

Identifiers

NCT04927962

RC31/20/0255

Details and patient eligibility

About

The purpose of this research is to study the impact of dentinogenesis (DI) and amelogenesis (AI) imperfecta on oral quality of life, exposure to bullying and dental anxiety in a population of adolescents. WThe present study will use validated scales to evaluate the impact of bullying on the oral quality of live of youth aged 10 to 18 years, with non-syndromic DI or AI treated in seven national competence or reference centers in rare oral diseases.

Enrollment: 87 patients

Sex: All

Ages: 10 to 18 years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• be between 10 and 18 years of age,
• consult for a care or follow-up consultation
• having a non-syndromic amelogenesis imperfecta or dentinogenesis imperfecta
• having access to a cell phone and/or tablet and/or personal or family computer
• covered by the social security of one of his parents
• understand French and one of whose parents (or legal representative) understands French
• have declared his or her non-opposition and one of whose parents (or legal representative) has declared his or her non-opposition to participate in the study.

Exclusion criteria

• Child presenting for diagnostic consultation and child who cannot read or whose 2 parents (legal representatives) cannot read