Psychosocial Needs and Exploration of Online Support for Patients With Mesothelioma

Memorial Sloan Kettering Cancer Center (MSK)

Status

Completed

Conditions

Mesothelioma

Treatments

Behavioral: Questionnaires & online virtual support group

Study type

Interventional

Funder types

Other

Identifiers

NCT01356251

11-066

Details and patient eligibility

About

The aim of this study is to learn about how mesothelioma affects patients' emotional and physical well-being. Also, the investigators would like to learn more about what patients need and how they deal with this illness. This information can help us find ways to lessen physical and emotional strains. Part of the study tests an alternate way of giving emotional support through the Internet. By providing support online, patients can participate in the comfort of their home.

Enrollment

107 patients

Sex

All

Ages

18+ years old

Volunteers

No Healthy Volunteers

Inclusion criteria

Diagnosis of pleural mesothelioma and receiving care at MSKCC
At least 18 years of age or older
Able to read and speak English
Patients who choose to participate in the Internet-based discussion groups, need a telephone, a computer, Internet access, and an e-mail account.

Exclusion criteria

Significant psychiatric or cognitive disturbance sufficient, in the investigator's judgment, to preclude providing informed consent or participating in a group-format intervention (i.e., acute psychiatric symptoms which require individual treatment).

Trial design

Primary purpose

Supportive Care

Allocation

Non-Randomized

Interventional model

Parallel Assignment

Masking

None (Open label)

107 participants in 2 patient groups

Surgical group with mesothelioma

Experimental group

Description:

The study proposed here has two parts: part 1 surveys mesothelioma patients' psychological and physical symptom burden and quality of life through a set of questionnaires that covers topics including coping, interpersonal support, mood, anxiety, and overall quality of life. In part 2, patients are invited to participate in an Internet-based discussion group.

Treatment:

Behavioral: Questionnaires & online virtual support group

Non Surgical group with mesothelioma

Experimental group

Description:

The study proposed here has two parts: part 1 surveys mesothelioma patients' psychological and physical symptom burden and quality of life through a set of questionnaires that covers topics including coping, interpersonal support, mood, anxiety, and overall quality of life. In part 2, patients are invited to participate in an Internet-based discussion group

Treatment:

Behavioral: Questionnaires & online virtual support group

Trial contacts and locations

1

Loading...