Pulmonary Hypertension Biorepository and Registry (PHBR)

University of Kansas

Status: Enrolling

Conditions: Pulmonary Hypertension Due to Lung Diseases and Hypoxia; Pulmonary Hypertension, Primary, 2; Pulmonary Hypertension, Primary, 3; Pulmonary Hypertension, Primary; Pulmonary Hypertension, Primary, 4; Pulmonary Hypertension Due to Left Heart Disease; Chronic Thromboembolic Pulmonary Hypertension; Pulmonary Hypertension; Pulmonary Arterial Hypertension

Study type: Observational

Funder types: Other

Identifiers

NCT04808596

STUDY#00145817

Details and patient eligibility

About

Establish a pulmonary hypertension registry and biorepository to lead towards a further understanding of the disease.

Full description

The aim of this project will be to establish a broad and wide-ranging registry and biorepository of blood samples from patients with pulmonary hypertension, including all WHO groups I-V to be used for future research in these areas. This will be both a retrospective and prospective project. The registry and biorepository will be utilized to study and grow our knowledge of the cellular mechanisms and mediators of the disease and, in turn, contribute to advancements in treatment.

Enrollment: 300 estimated patients

Sex: All

Ages: 18+ years old

Volunteers: No Healthy Volunteers

Inclusion criteria

1. The participant is a patient at TUKHS or has agreed to participate in a study approved by the KUMC Human Research Protection Program (HRPP)
2. The participant has a diagnosis of pulmonary hypertension confirmed by right heart catheterization
3. Patient is ≥ 18 years of age or older

Exclusion criteria

1. Participant declines to participate (living patients only)
2. Participant is unable to provide informed consent (living patients only)