Purpose in Life Survey (PIL)

Mary Radomski

Status: Invitation-only

Conditions: Breast Cancer; Traumatic Brain Injury

Treatments: Other: Survey

Study type: Observational

Funder types: Other

Identifiers

NCT05790278

1920306

Details and patient eligibility

About

At present, there is no empirical data that specifies the likely prevalence of purpose in life disruption among various clinical populations. Between one-third and one-half of cancer survivors report some degree of existential distress during or after their treatment, but these findings are not specific to the domain of purpose in life.

To address the aforementioned gap, we propose to conduct a survey study to determine the prevalence of purpose disruption in two clinical populations and determine if the prevalence of purpose disruption in these populations is different from that of a normative population.

Enrollment: 300 estimated patients

Sex: All

Ages: 18+ years old

Volunteers: Accepts Healthy Volunteers

Inclusion criteria

• Age 18+
• Stage 1, 2, 3 cancer
• Cancer types: breast cancer, non-Hodgkin's lymphoma; colorectal cancer
• Receiving oncology services or treatment through AHCI
• Have completed primary cancer treatment within the past 12 months
• Able to communicate in English;
• Able to see and read (with or without assistive devices);
• Has access to a device (computer, phone, tablet) and an email address;
• Access to an internet connection.
• Has a known email address (in EPIC) and/or home telephone number
• Adults who sustained a traumatic brain injury within the past 12 months.
• Attending the 2022 MN State Fair

Exclusion criteria

• Have declined consent for use of medical records in research during admission to AH facility

Trial design

300 participants in 3 patient groups

Adults with Early Stage Cancer

Treatment:

Other: Survey

Adults with Traumatic Brain Injury

Treatment:

Other: Survey

Health Control Adults

Treatment:

Other: Survey