Qualitative Analysis of the Post-Stroke Continuum Among African Stroke Survivors in Alabama

The University of Alabama at Birmingham

Status: Withdrawn

Conditions: Stroke; Caregiver Burden; Patient Satisfaction; Disability Physical

Treatments: Other: Informational Interview; Other: Focus Group

Study type: Observational

Funder types: Other

Identifiers

NCT05350488

300009035

Details and patient eligibility

About

This proposal seeks to improve the investigators' post-stroke TOC process through developing an innovative, patient informed and guided solution aimed at addressing the investigators' deep south African American population within the UAB system. The investigators will engage participants in both urban and rural Alabama through informational interviews and work to find common themes to address so that future interventions are useful to their unique needs and desires. This goes beyond simply identifying barriers and endeavors to discovering solutions.

Sex: All

Ages: 40+ years old

Volunteers: No Healthy Volunteers

Inclusion criteria

1. African American
2. Aged 40 years and older
3. Required home health therapy, outpatient therapy, skilled nursing facility or inpatient rehabilitation
4. Alabama Resident
5. Fluent in English
6. Stroke confirmed by advanced imaging (CT, MRI)
7. Zoom capability (participants can either have video conference ability or can call into Zoom line)
8. Caregivers must be identified by patients as providing a significant portion of care and/or be able to articulate their role as a caregiver

Exclusion criteria

1. Did not require home health therapy, outpatient therapy or inpatient rehabilitation
2. Long term residents of skilled nursing facility
3. Severe aphasia
4. Severe cognitive impairments

Trial design

0 participants in 3 patient groups

Stroke Survivors <1 year

Description:

Group A will include participants that are less than 1 year out from their most recent stroke.

Treatment:

Other: Informational Interview

Stroke Survivors >1 year

Description:

Group B will include participants that are greater than 1 year out from their most recent

Treatment:

Other: Informational Interview

Caregivers

Description:

Group C will include participants' identified caregivers.

Treatment:

Other: Focus Group