Quality of Life (QOL) Registry for Patients With AL Amyloidosis

Prothena

Status: Completed

Conditions: AL Amyloidosis; Amyloidosis

Treatments: Other: non-interventional

Study type: Observational

Funder types: Other; Industry

Identifiers

NCT02574676

CO-083252

Details and patient eligibility

About

This is an online registry to document the psychometric properties of SF-36v2 among patients with AL Amyloidosis, to document patients' burden of disease, to better understand the patient's experience and to follow quality of life issues using a variety of QOL measures.

Enrollment: 343 patients

Sex: All

Ages: 18+ years old

Volunteers: No Healthy Volunteers

Inclusion and exclusion criteria

Inclusion Criteria:

• Patients must have AL Amyloidosis

Exclusion Criteria: