Readiness to Disclose Mother's HIV Diagnosis to Their Children in Beijing, China
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About
Specific aims of the 1-year project are to pilot test the disclosure support intervention by (a) evaluating acceptability and feasibility with a preliminary randomized trial among 10 HIV+ mothers (5 in the intervention group and 5 in the treatment as usual (TAU) group) and (b) assessing outcomes in mothers (quality of life and mental health indicators, adherence, social support, and disclosure stress, efficacy, readiness, and completion). The intervention will be compared to treatment as usual, with baseline (0 weeks), immediate post-intervention (4 weeks), and 12-week follow-up (16 weeks) assessments.
Full description
HIV disclosure to children has been shown to strengthen family relations and increase assistance with medical care, reinforcing the parent's willingness to live. Some Chinese children aware of their parents HIV diagnosis do exhibit emotional and social dysfunction; however, adequate support from caregivers (e.g., grandparents or even their HIV+ parents) can improve the children's quality of life and academic performance. There is a clear need for practical interventions to address parental distress around HIV disclosure in China, where cultural norms often emphasize family identity and cohesion and underscore the need for family-based programs, which have been shown to be feasible and efficacious for HIV-affected families.
Enrollment
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Inclusion criteria
- HIV+ mother ≥18 years of age,
- not psychotic or demented;
- receiving clinical care at the Ditan hospital,
- a mother of an HIV-negative child of age 13-25 years who does not know about the mother's infection;
- well enough to attend study sessions as the clinic.
Exclusion criteria
- no psychotic or demented
Trial design
Primary purpose
Allocation
Interventional model
Masking
5 participants in 2 patient groups
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Data sourced from clinicaltrials.gov
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