Registration Study Sarcoma

Radboud University Medical Center

Status

Enrolling

Conditions

Sarcoma

Treatments

Other: Surgery

Study type

Observational

Funder types

Other

Identifiers

NCT05373810

NL69559.091.19

Details and patient eligibility

About

The prospective and retrospective data collection on bone and soft tissue sarcoma is an observational cohort study aimed to collect clinical data and patient reported outcomes of all patients who have been diagnosed with bone or soft tissue sarcoma in the Netherlands. All patients diagnosed with bone or soft tissue sarcoma who are treated, planned for treatment or currently being treated, will be asked to participate in this project.

Full description

The main objectives of this project are:

To improve the knowledge and therefore the treatment care, in patients with bone or soft tissue sarcoma in the Netherlands
To start an observational cohort study of bone and soft tissue sarcoma patients from their primary diagnosis until death
To prospectively and retrospectively collect data on medical history, co-morbidities, baseline clinical parameters, imaging results, pathology results, tumor characteristics, treatment, treatment outcomes, functional outcome, cosmetic outcome, hospital stays and interventions.
To collect data on health related quality of life and work ability, to collect data on patient reported outcomes measures.
To create a continuous basis for a large variety of research purposes including:
- Prognostic and predictive research
- Health care policies and cost-effectiveness studies