Registry of Sarcoidosis Associated Pulmonary Hypertension (RESAPH)

University of Cincinnati

Status: Unknown

Conditions: Sarcoidosis; Pulmonary Hypertension

Treatments: Other: Observation

Study type: Observational

Funder types: Other

Identifiers

NCT01467791

RESAPH 1

Details and patient eligibility

About

Registry to follow patients with sarcoidosis associated pulmonary hypertension

Full description

This is a multi center registry of sarcoidosis associated pulmonary hypertension (SAPH). With this registry, the investigators will characterize the demographics, clinical course, hemodynamics, pulmonary physiology, and disease management of sarcoidosis associated pulmonary hypertension on the United States. The investigators will also compare these features to non-US sites.

Enrollment: 300 estimated patients

Sex: All

Ages: 18 to 100 years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• Patients with sarcoidosis as defined by the ATS/WASOG statement
• Patients with pulmonary hypertension as confirmed by right heart catheterization
• Patients willing to provide written informed consent

Exclusion criteria

• Unwillingness to provide assurance that they will complete the follow up visits for the study

Trial design

300 participants in 1 patient group

Patients

Description:

All patients with sarcoidosis associated pulmonary hypertension

Treatment:

Other: Observation