Registry to Collect Health Information About Desmoplastic Small Round Cell Tumor

Memorial Sloan Kettering Cancer Center (MSK)

Status: Enrolling

Conditions: Desmoplastic Small Round Cell Tumor

Study type: Observational

Funder types: Other

Identifiers

NCT04690374

20-551

Details and patient eligibility

About

This study is a patient registry of people with Desmoplastic Small Round Cell Tumor (DSRCT). A patient registry is a collection of health information about a group of people, and it is usually focused on a specific diagnosis or disease.

The purpose of this registry is to create a database- a collection of information-or better understanding DSRCT. Researchers will use the information from this database to learn more about DSRCT and for current and future research on DSRCT.

Enrollment: 250 estimated patients

Sex: All

Volunteers: No Healthy Volunteers

Inclusion criteria

• Participants must have a diagnosis of desmoplastic small round cell tumor
• Participants may be of any age as long as the appropriate consent and assent may be obtained
• Willing to provide historical and longitudinal clinical data

Exclusion criteria

• Participant unwilling to provide consent or share historical and longitudinal clinical data

Trial design

250 participants in 1 patient group

Desmoplastic small round cell tumor (DSRCT)

Description:

Collect historical/longitudinal clinical, radiographic and molecular features of DSRCT patients as documented in medical records to improve knowledge about DSRCT