Rehabilitation of Children With Multiple Disabilities

Children's Treatment Network

Status and phase: Completed; Phase 1

Conditions: Brain Injury; Cerebral Palsy; Down's Syndrome; Autism

Treatments: Other: CTN model of care for children and their families

Study type: Interventional

Funder types: Other; NETWORK

Identifiers

NCT01379443

2008H00766

Details and patient eligibility

About

The objective of the study is to compare the usual care and treatment of children and youth (0-19 years) with multiple developmental delays and disabilities and their families in Simcoe York with a co-ordinated, navigated approach to care using the Children's Treatment Network (CTN) services.

Full description

The Children's Treatment Network (CTN)links existing children's services rather than creating a new Centre. The purpose of the evaluation is to compare the effectiveness and efficiency of this service with the usual care that people receive. 500 Children will be randomized to receive either usual care (250) or the co-ordinated, navigated care from CTN (250). The primary question to be addressed is whether the more integrated CTN model of service improves family-centered services, parent mental health, parenting, family function and the quality of the child's life and the families resource needs as well as reduce expenditures for the families' use of all other health and social services compared to the outcomes of usual care alone. What children and families with what characteristics and circumstances most benefit from which approach to the treatment of childhood disability in Simcoe-York? At what cost?

Agencies providing services to children will be evaluated as to how effective their integration of teams are functioning, their partnership with each other and capacity building in the community.

Enrollment: 445 patients

Sex: All

Ages: 1 minute to 19 years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• Children and youth up to 19 years of age
• living in Simcoe-York.
• English speaking
• multi-need family
• children on agency service wait lists
• children under the care of Children's Aid Societies
• Families with more than 1 disabled child

Exclusion criteria

-youth over 19 years.

Trial design

Primary purpose: Health Services Research

Allocation: Randomized

Interventional model: Parallel Assignment

Masking: Double Blind

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445 participants in 2 patient groups

Parental reports of their children

Active Comparator group

Description:

Parental report of family-centered processes of care (MPOC) Parent mental health Parent perceived social support

Treatment:

Other: CTN model of care for children and their families

Integration of service provider teams

No Intervention group

Description:

Network co-alition teams were measured using the Integration of Human Services Measure, the Partnership Synergy Measure and a Network Capacity Measure were employed at the CEO level.