Reliability and Validity of the Turkish Version of the PedsQL 3.0 Neuromuscular Module for 2-to 4- Year-old

Medipol Health Group

Status

Invitation-only

Conditions

Pediatric Disorder

Neuromuscular Diseases

Quality of Life

Spinal Muscular Atrophy

Study type

Observational

Funder types

Other

Identifiers

NCT05539456

E-10840098-772.02-213

Details and patient eligibility

About

The aim of the investigator's study was to investigate translating the PedsQL 3.0 Neuromuscular Module for 2-to 4- Year-old and using it in clinics reliably and validity with a Turkish version of the PedsQL Generic Core (Pediatric Quality of Life Questionnare) in children with Spinal Muscular Atrophy in Turkey

Full description

The PedsQL 3.0 Neuromuscular Module for 2-to 4- year-old will be translated into Turkish by following the language translation steps. First of all, the English form will be translated into Turkish by two people who are fluent in English. Then, the forms translated by another expert in the field will be reviewed. The revised text will be translated from Turkish into English by another person with a good command of English and will be compared with the original scale by the lecturer. If a significant change in meaning is not detected, the scale will be applied to 10 parents. In case of incomprehensible questions, which are reported to be lacking in expression, the scale will be finalized after revision and corrections are made by the research team.

Enrollment

55 estimated patients

Sex

All

Ages

2 to 4 years old

Volunteers

No Healthy Volunteers

Inclusion criteria