Reliability of the Scoliosis Caregiver Response and Emotional Scale (SCaRES) Questionnaire

Hasan Kalyoncu University

Status: Not yet enrolling

Conditions: Caregiver Anxiety; Scoliosis Idiopathic Adolescent; Scoliosis Idiopathic

Study type: Observational

Funder types: Other

Identifiers

NCT07276178

2025/126

Details and patient eligibility

About

The aim of this study is to examine the psychometric properties of the Turkish version of the Scoliosis Caregiver Response and Emotional Scale (SCaRES) questionnaire; to evaluate the reliability of the Turkish form and to ensure its usability in clinical and research fields.

Full description

dependent on the involvement of families and caregivers. The emotional burden, stress, anxiety, and social limitations experienced by caregivers during the treatment process can indirectly affect both the individual's quality of life and the success of the patient's treatment. Therefore, objectively assessing the emotional and psychosocial impact experienced by caregivers of individuals with scoliosis is crucial for planning appropriate supportive interventions. The Scoliosis Caregiver Response and Emotional Scale (SCaRES), developed for this purpose, is a specific measurement tool that assesses emotional and behavioral responses to the treatment process in caregivers of individuals with scoliosis. Validity and reliability studies are required for the scale's use in different cultures and languages. Cultural differences, linguistic shifts, and healthcare system dynamics limit the scale's direct translation. Therefore, developing a Turkish version of the SCaRES is crucial for validly and reliably assessing the psychosocial burden experienced by caregivers in Turkish society. The aim of this study was to examine the psychometric properties of the Turkish version of the Scoliosis Caregiver Response and Emotional Scale (SCaRES) and to assess its reliability and ensure its usability in clinical and research settings.

Enrollment: 23 estimated patients

Sex: All

Ages: 18+ years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• Individuals who are an adult (parent or primary caregiver) responsible for the care of an individual diagnosed with scoliosis between the ages of 10 and 18.
• Individuals who are able to read and understand Turkish.
• Individuals who are actively involved in the child's treatment process (e.g., use of a brace, exercise program, follow-up appointments).
• Individuals who volunteer to participate in the study.

Exclusion criteria

• Participants whose children have a history of other comorbidities (neurological, etc.),
• Children whose children have a history of spinal surgery,
• Individuals who do not have an active role in the care process (e.g., parents who only provide financial support),
• Caregivers with intellectual disabilities, serious psychiatric diagnoses, or cognitive impairments that limit communication,
• Participants with incomplete or invalid survey forms.

Trial design

23 participants in 1 patient group

Scoliosis Caregiver Group

Description:

Demographic information of caregivers who met the study criteria will be recorded at the beginning of the study. In this study, written permission was obtained from the authors of the original scale to establish the reliability and psychometric properties of the Turkish version of the Scoliosis Caregiver Response and Emotional Survey. The scale was first translated into Turkish by two independent translators, and the translations were combined and synthesized by experts (physiotherapy/rehabilitation specialists and a linguist). The resulting Turkish version was back-translated into English by an independent translator and checked for consistency with the original text. The Scoliosis Caregiver Response and Emotional Scale (SCaRES) is a specific scale developed to measure the emotional and behavioral responses of parents or primary caregivers of children or adolescents with scoliosis to the treatment process. The scale assesses dimensions such as stress, anxiety, social limitations, and