Remote Physiotherapy to Protect Physical Health in Duchenne Muscular Dystrophy

Lokman Hekim Üniversitesi

Status: Completed

Conditions: Duchenne Muscular Dystrophy

Treatments: Other: Telerehabilitation

Study type: Interventional

Funder types: Other

Identifiers

NCT06103006

003/2021

Details and patient eligibility

About

Duchenne Muscular Dystrophy (DMD) is a progressive genetic neuromuscular disease characterized by progressive loss of motor function, respiratory failure, and cardiomyopathy required regular physiotherapy. With the outbreak of the pandemic rehabilitation centers that make up the weekly physiotherapy routine of children with disabilities have slowed down or even stopped their activities. So DMD who have additional diseases such as respiratory muscle weakness, spinal deformity, obesity, and cardiac dysfunction have also been negatively affected. The 'telerehabilitation' method, which is well planned and prepared for the abilities and needs of patients and caregivers, is seen as a good option at this point.

Studies, reporting the feasibility and safety of telerehabilitation in joint replacement, multiple sclerosis, and post-operative conditions, report that the length of stay was reduced, there was access to the same level of service regardless of the distance, and there was no travel cost. Despite these advantages, the framework and applicability of telerehabilitation programs have been investigated limited and not focused on effectiveness of telerehabilitation in patients with DMD.

According to the current knowledge, telerehabilitation in DMD is a subject that needs to be investigated in terms of its benefits. So, in this study, it was aimed to show the telerehabilitation's feasibility and its effects on performance level, endurance, fall frequency, pulmonary functions, and satisfaction level with the program in individuals with DMD.

Enrollment: 42 patients

Sex: All

Ages: 5 to 26 years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• Able to communicate verbally and visually,
• Older than 5 years old

Exclusion criteria

• Individuals who had undergone any surgical operations in the past 6 months,
• Had a severe cognitive and breathing impairment,
• Using mechanical ventilator continually or intermittent,
• Having febrile infection

Trial design

Primary purpose: Treatment

Allocation: N/A

Interventional model: Single Group Assignment

Masking: None (Open label)

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42 participants in 1 patient group

Telerehabilitation Group

Experimental group

Description:

Participants in this group will receive telerehabilitation exercises.

Treatment:

Other: Telerehabilitation