Resilience in Persons Following Spinal Cord Injury

Shirley Ryan AbilityLab

Status: Active, not recruiting

Conditions: Spinal Cord Injuries

Treatments: Other: Structured Interview

Study type: Observational

Funder types: Other

Identifiers

NCT04544761

STU00213014

Details and patient eligibility

About

This study aims to quantify resilience in survivors of a spinal cord injury. The study will consist of structured interviews and self-reported surveys. We will look for common themes between participants at different stages of injury (1-5 years, 5-15 years, >15 Years).

Full description

The goal of this project is to broaden the understanding of the lived experience of aging with a disability, from the perspectives of individuals with physical disabilities resulting from spinal cord injury (SCI). The specific objectives of this project are to:

1. Learn how people with SCI attain and maintain optimal quality of life as they age.
2. Understand how people with SCI develop resilience as they grow older.
3. Understand how individual quality of life is related to the degree and mechanism of resilience among people with SCI.
4. Learn which resources and practices have been most helpful and useful to people with SCI as they age with their disability.
5. Assess personal, behavioral, and environmental factors that contribute to resilience and quality of life among people aging with SCI.
6. Refine and confirm a holistic model for the relationships among the concepts of resilience, quality of life, and person-centered factors (resources, behaviors).

Through in-depth interviews and detailed surveys, we will explore how people with SCI attain and maintain optimal quality of life as they age, and how their quality of life relates to resiliency as they traverse the path of aging with SCI. We will explore with participants the resources and practices that have been most helpful and useful to them as they age with their disability.

Enrollment: 28 patients

Sex: All

Ages: 18 to 80 years old

Volunteers: No Healthy Volunteers

Inclusion and exclusion criteria

Inclusion Criteria:

• 18-80 years old
• History of Traumatic Spinal Cord Injury at least 1 year prior
• Ability to self-report on factors affecting health and well being Exclusion Criteria
• Progressive Spinal Cord Injury

Trial design

28 participants in 3 patient groups

1-5 Years post

Description:

Persons with Spinal Cord Injury occurring between 1-5 years prior

Treatment:

Other: Structured Interview

5-15 Years post

Description:

Persons with Spinal Cord Injury occurring between 5-15 years prior

Treatment:

Other: Structured Interview

>15 Years post

Description:

Persons with Spinal Cord Injury occurring at least 15 years prior

Treatment:

Other: Structured Interview