Retinoblastoma Survivor Study: Assessment of General Health and Quality of Life

Memorial Sloan Kettering Cancer Center (MSK)

Status: Active, not recruiting

Conditions: Retinoblastoma

Treatments: Behavioral: Questionnaires

Study type: Observational

Funder types: Other; NIH

Identifiers

NCT00639301

08-019

Details and patient eligibility

About

The purpose of this study is to find out about the quality of life and health in a group of adults who had retinoblastoma when they were children. By quality of life, we mean how you are feeling about being satisfied with things in your life, including your physical health, your emotional health, and your ability to carry out daily activities. We hope that this information will help us provide better care to future children with retinoblastoma and better follow-up care for survivors of retinoblastoma.

Enrollment: 473 patients

Sex: All

Ages: 18+ years old

Volunteers: No Healthy Volunteers

Inclusion and exclusion criteria

Inclusion Criteria:

• Patient diagnosed with retinoblastoma at any age
• At least five years from completion of all retinoblastoma-directed therapy
• Able to provide informed consent and/or assent, if indicated

Trial design

473 participants in 1 patient group

1

Description:

Long term survivors of retinoblastoma

Treatment:

Behavioral: Questionnaires