Sahlgrenska Cardiomyopathy Project

G

Göteborg University

Status

Invitation-only

Conditions

Myocarditis
Dilated Cardiomyopathies
Amyloidosis; Heart (Manifestation)
Arrhythmogenic Right Ventricular Cardiomyopathy
Restrictive Cardiomyopathy
Sarcoidosis With Myocarditis
Hypertrophic Cardiomyopathy
Giant Cell Myocarditis

Study type

Observational

Funder types

Other

Identifiers

NCT03527342
SUCARD

Details and patient eligibility

About

This is a joint project by Sahlgrenska University Hospital: Sahlgrenska, Östra and Mölndal. Our objective is to diagnose and map patients with well phenotyped cardiomyopathies (CMP) including in depth clinical and molecular phenotyping to enable earlier and specific treatment. The project will serve as: 1. resource for diagnostic and therapeutic trials 2. common biomaterial bank 3. resource for detailed molecular analyses on patients' biomaterials and patient specific symptoms and examination results

Enrollment

3,000 estimated patients

Sex

All

Ages

18 to 99 years old

Volunteers

No Healthy Volunteers

Inclusion criteria

  • Patients with primary cardiomyopathies including hereditary and inflammatory dilated cardiomyopathy, hypertrophic cardiomyopathy, restrictive cardiomyopathy, left ventricular non-compaction cardiomyopathy, arrhythmogenic right ventricular cardiomyopathy, myocarditis, giant cell myocarditis, sarcoidosis and amyloidosis engaging the heart

Exclusion criteria

  • Patient with other preexisting cardiac diseases such as significant valvular, ischemic or pericardial disease before they receive a cardiomyopathy diagnose
  • patients < 18 years

Trial design

3,000 participants in 8 patient groups

Dilated Cardiomyopathy
Myocarditis
Sarcoidosis Heart
Giant Cell Myocarditis
Amyloidosis Heart
Hypertrophic Cardiomyopathies
Left Ventricular Myocardial Noncompaction Cardiomyopathy
Arrhythmogenic Right Ventricular Cardiomyopathies

Trial contacts and locations

1

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Data sourced from clinicaltrials.gov

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