SBS DISK- Creation of a Quality of Life Tool for Short Bowel Patients Compared with a Validated Quality of Life Questionnaire (SBS QoL)

Civil Hospices of Lyon

Status: Not yet enrolling

Conditions: Short Bowel Syndrome

Study type: Observational

Funder types: Other

Identifiers

NCT06771505

69HCL24_0889

2024-A02032-45 (Other Identifier)

Details and patient eligibility

About

Patients with short bowel syndrome have an impact on their quality of life because they need temporary or permanent parenteral nutritional support. The quality of life of these patients has been the subject of several studies and assessment tools exist, such as the Short Bowel Syndrome Quality of Life (SBS QoL). This tool may seem complex and tedious to use in everyday practice. However, it is important to regularly assess the quality of life of these patients. This is why the investigators are proposing to create a new tool for more rapid assessment of the quality of life of patients with short bowel syndrome.

Enrollment: 100 estimated patients

Sex: All

Ages: 18 to 99 years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• Age 18 or over
• Patient able to read and speak French
• Patient suffering from short bowel syndrome

Exclusion criteria

• Known cognitive disorders

Trial design

100 participants in 1 patient group

Questionnaire completion

Description:

The partient completes the two quality of life assessment questionnaires (Short Bowel Syndrome Quality of Life (SBS QoL) and SBS disk assessment tool), in paper format.