SHARE (Sharing Goals and Preferences) Study

Dana-Farber Cancer Institute

Status: Completed

Conditions: Other Cancer

Treatments: Other: More Good Days video&brief questionnaire

Study type: Interventional

Funder types: Other

Identifiers

NCT03392090

17-520

Details and patient eligibility

About

This research study is evaluating the usefulness of a video and questionnaire to help cancer patients think about the goals of their care.

Full description

The investigators are conducting a study with patients from Dana Farber Cancer Institute (DFCI) and DFCI-affiliate at St. Elizabeth's Hospital who are being treated for their cancer. The purpose of the study is to test the implementation of a short video, a brief questionnaire, and a wallet card designed to help patients understand and articulate their goals and preferences when making decisions about their cancer treatment and communicate these preferences to their clinicians.

The short video and brief questionnaire were developed to help patients with cancer think about their goals of care and their treatment and information preferences and to prompt discussions with their health care team about these preferences. The wallet card is designed to help patients remember some key questions that may be useful as they make decisions about future treatments

A pilot test will be completed to assess the feasibility and usability of the revised "More Good Days" video, brief questionnaire and wallet card in helping seriously-ill cancer patients think about what a good day means to them and test whether these tools can help patients to identify and communicate their medical treatment preferences and goals with their care team.

Enrollment: 53 patients

Sex: All

Ages: 18+ years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• Patient who are receiving treatment at:

  • DFCI in the thoracic oncology group
  • DFCI-affiliated St. Elizabeth's Hospital and have progressed on 2nd line or later-line systemic therapies (chemotherapy, immunotherapy, biological, or targeted therapies)

• Clinicians' schedules to identify patients with metastatic cancers who are considering or pursuing additional palliative therapy

Exclusion criteria

• Patients who are not interested in the study
• Patients of physicians who opt out of participating
• Patients whose physicians did not opt out, but whose physician does not think they are well suited for the study

Trial design

Primary purpose: Supportive Care

Allocation: N/A

Interventional model: Single Group Assignment

Masking: None (Open label)

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53 participants in 1 patient group

More Good Days video&brief questionnaire

Experimental group

Description:

* Participants will watch the More Good Days video and will be given a brief questionnaire and wallet card to help identify their goals and preferences about information and care * The More Good Days video is developed to help patients with advanced cancer think about what a good day means to them and to help them think about questions they may have for their physicians when discussing treatments. * The 3-page brief questionnaire is designed to help patients identify their preferences about information and care and to help encourage a conversation between patients and their doctors and health care team about their goals and preferences * The wallet card will help patients think about questions they may want to ask their providers when considering treatments.

Treatment:

Other: More Good Days video&brief questionnaire