Social Participation After Childhood Craniopharyngioma (CRANIO)

BERTHILLIER Julien

Status: Completed

Conditions: Children With a Craniopharyngioma

Treatments: Other: observational study so no intervention

Study type: Observational

Funder types: Other

Identifiers

NCT03139526

2015-018

Details and patient eligibility

About

Craniopharyngioma is a rare, benign central nervous system tumor, which may be a source of multiple complications, from endocrinology to vision, neurology and neurocognitive functions. This morbidity can lead to reduced participation in life activities, as described in the International Classification of Functioning, Disability, and Health (ICF). The primary objective of this study is to measure participation in life activities in a population of children affected by childhood craniopharyngioma, using the assessement of life habits questionnaire (LIFE-H questionnaire), validated as a social participation measurement tool in various pediatric disabilities.

Enrollment: 20 patients

Sex: All

Ages: 1 day to 18 years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• Children with a craniopharyngioma

Exclusion criteria

• None