Specifying Interventions From the Sickle Cell Disease Implementation Consortium (SCDIC)

The Washington University

Status: Completed

Conditions: Anemia, Sickle Cell

Treatments: Behavioral: SCDIC interventions

Study type: Observational

Funder types: Other; NIH

Identifiers

NCT03380351

3U01HL133994-02S1 (U.S. NIH Grant/Contract)

Details and patient eligibility

About

The goal of this study is to specify the interventions, implementation strategies and control conditions from the Sickle Cell Disease Implementation Consortium (SCDIC) using a mixed-methods approach to study site materials and conduct semi-structured qualitative interviews with site representatives (N=3 per site). We focused on the Emergency Department Working Group from the SCDIC working groups.

Full description

The long-term goal of this line of research is to identify the most effective components of SCD interventions while also identifying effective implementation strategies informed by a systematic and rigorous work done by the members of the SCDIC consortium to improve the quality of life of people with SCD, a life-threatening hematological disorder. This study aims to collect detailed information about the planned interventions, the implementation strategies and the control conditions from each site.

Enrollment: 17 patients

Sex: All

Ages: 18+ years old

Volunteers: Accepts Healthy Volunteers

Inclusion criteria

• three representatives of each of the SDIC sites: the Principal Investigator, and two people nominated by the PI.

Exclusion criteria

• none

Trial design

17 participants in 1 patient group

SCDIC interventions

Description:

Careful detail the intervention components and the implementation strategies (i.e., the mechanisms by which the interventions are being delivered in usual care) being developed by the consortium.

Treatment:

Behavioral: SCDIC interventions