Spiritual Health Scale in Chinese Pediatric Cancer Patients

The Hong Kong Polytechnic University

Status: Unknown

Conditions: Child

Treatments: Other: Questionnaire

Study type: Observational

Funder types: Other

Identifiers

NCT05371236

SPH

Details and patient eligibility

About

Pediatric cancer patients experience spiritual concerns such as meaningless, hopeless of life, fear of death and losses at all stages of illness. The availability of a valid and reliable instrument that accurately assesses the level of spiritual health among pediatric cancer patients is crucial before any appropriate interventions to solve their spiritual concerns can be appropriately planned and evaluated.

Full description

The study aimed to adapt the 12-item Functional Assessment of Chronic Illness Therapy-Spiritual Well-being Scale (FACIT-Sp-12) scale and validate it in Chinese pediatric cancer patients.

A two-phase sequential method design will be used. Phase I will use a descriptive qualitative approach to understand pediatric cancer patients' opinions related with spiritual issues and experience. At least 12 participants are expected to be interviewed. The results of the qualitative study will be used to compare with the items of the original scale, and emerging themes will be used to generate new items. Phase Ⅱ will translates and adapt the scale based on the result of Phase I. Further, the adapted version of the scale will be validated among 200 pediatric cancer patients.

Enrollment: 200 estimated patients

Sex: All

Ages: 8 to 17 years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• age 8-17 years old,
• diagnosed with any type of cancer who were treated at these sites at any point after their diagnosis,
• knowing about condition and prognosis of their disease,
• their parents agree to sign the informed consent form,
• able to communicate with Chinese and read Chinese.

Exclusion criteria

• younger than age 8-17 years old
• cancer survivors