Storytelling to Promote Living Donor Kidney Transplant (LDKT Stories)

University of British Columbia

Status: Not yet enrolling

Conditions: Patient Education; Narrative Medicine; Health Equity; Living Donor Kidney Transplantation

Treatments: Behavioral: Storytelling Video; Behavioral: Standard Patient Education

Study type: Interventional

Funder types: Other

Identifiers

NCT06734819

H23-02077

Details and patient eligibility

About

This study will examine the effectiveness of first-person storytelling in encouraging patients with end-stage renal disease to pursue Living Donor Kidney Transplant (LDKT). The Living Donation Storytelling Library LDSP is a library of videos from donors and recipients sharing their transplant stories, serving as a narrative-based transplant education resource. This study will investigate if exposure to the LDSP changes patient readiness and motivation to pursue LDKT to ultimately increase the number of donor inquiries and donor evaluations. This study will also test if the LDSP serves as a health-literate and culturally safe education approach that can effectively support racialized communities who have a disproportionately higher need for LDKT.

Full description

Background: In Canada, racialized communities are 50 to 75 percent less likely to be referred for living donor kidney transplant (LDKT), identify donors, complete evaluation, and receive transplant in comparison to white patients. Several narrative-based transplant education interventions have proven to be effective in increasing LDKT pursuit among Black patients in America. However, these education interventions are labour- and time-intensive and fail to reach the general public outside the location of transplant education. Efficacy of interpersonal education interventions have also yet to be evaluated in Canadian minority populations, predominantly comprised of South Asian, East Asian and Indigenous communities.

Objective: The aim of this study is to examine the effectiveness of a narrative-based LKDT education intervention, the Living Donation Storytelling Library, in increasing transplant knowledge, health literacy, and recruitment of living donors. Secondarily, this study aims to compare hereterogeneity in viewer responses across race and gender to identify potential targeted narrative interventions for LKDT education.

Method: Two-arm randomized control trial with 80 prospective living donor kidney transplant recipients at Vancouver General Hospital in collaboration with Houston Methodist Hospital and Weill Cornell Medical Center.

Enrollment: 80 estimated patients

Sex: All

Ages: 18+ years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• Waitlisted and newly referred kidney transplant candidates at the Vancouver Kidney Transplant Program
• 18 years of age or older
• Able to provide informed consent
• English literate

Exclusion criteria

• Inability to understand English and provide informed consent
• Transplant candidates excluded from transplantation based on clinical criteria or other contraindications for transplant
• Unwilling to disclose information on race or ethnicity

Trial design

Primary purpose: Other

Allocation: Randomized

Interventional model: Parallel Assignment

Masking: Single Blind

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80 participants in 2 patient groups

Control

Active Comparator group

Description:

Standard of care patient education materials

Treatment:

Behavioral: Standard Patient Education

Experimental

Experimental group

Description:

2 storytelling videos in addition to standard of care patient education materials

Treatment:

Behavioral: Standard Patient Education

Behavioral: Storytelling Video