Understanding Parental Stress and Quality of Life in Families of Children With Diplegic Cerebral Palsy: Key Influencing Factors (CP)

Sinai University

Status: Completed

Conditions: Diaplegia; Cerebral Palsy; Stress

Study type: Observational

Funder types: Other

Identifiers

NCT06516107

SU.REC.2024(30H)

Details and patient eligibility

About

PURPOSE:

To estimate the relationships between the child, parents, and family factors and parent stress and QoL among parents of children with diplegic CP.

BACKGROUND:

Cerebral palsy (CP) is considered the primary reason of motor impairment among children worldwide. Compared to parents of typically developing children, parents of children with cerebral palsy (CP) experience higher levels of stress and reduced quality of life (QoL).

HYPOTHESES:

There is no relation between the level of functional impairment among children with diplegic CP and their parental stress and QOL.

RESEARCH QUESTION:

Is there a relationship between the level of functional impairment among children with diplegic CP and the degree of their parental stress and quality of life?

Enrollment: 100 patients

Sex: All

Volunteers: No Healthy Volunteers

Inclusion criteria

• Parents of children between the ages of 2 and 4.8 who had been diagnosed with diplegic CP.

  • Parents of children with diplegic CP who were in a stable clinical and medical state.

Exclusion criteria

• parents of children with behavioral problem.
• a history of ongoing heart disease
• a botulinum toxin injection within the six months previous to the study
• chronic chest disease
• significant visual or auditory impairment
• parents with limited literacy

Trial design

100 participants in 1 patient group

1 Group of parents of children with diplegic cerebral palsy

Description:

Parents of children between the ages of 2 and 4.8 who had been diagnosed with diplegic CP and were in a stable clinical and medical state will be included in this study. However, parents of children with behavioral problems, a history of ongoing heart disease, a botulinum toxin injection within the six months previous to the study, chronic chest disease, significant visual or auditory impairment, or parents with limited literacy will not allowed to participate in the study