Study of the Health Information Needs of Brain Cancer Patients

University of Florida

Status: Completed

Conditions: Brain Tumor

Treatments: Other: Focus Group

Study type: Observational

Funder types: Other

Identifiers

NCT01130220

708-2009

Details and patient eligibility

About

The purpose of this research is to explore the factors involved in brain cancer health care literacy needs.

Full description

A mere subset of the reasons behind unmet health care literacy needs include the health care systems' increasing complexity, increased time constraints, profound treatment decision making requirements, decreased financial resources, fracturing social networks and diversifying educational and cultural needs.

This project will use focus groups to explore the factors involved in brain cancer health care literacy from the perspectives of patients and those involved in their care. Hypothesis generated from this project will be directly applied toward future projects. The overarching goals are improved access and adequacy of health care literacy information through the eventual development of validated, useful, reliable health care literacy information tools for brain cancer patients and those involved in their care.

Enrollment: 27 patients

Sex: All

Ages: 18 to 89 years old

Volunteers: No Healthy Volunteers

Inclusion criteria

BRAIN TUMOR PATIENTS:

• 18 to 89 years of age
• Have or have had any type of brain tumor
• Ability to communicate in English
• Willingness to participate in a 30-60 minute focus group

HEALTH CARE PROVIDERS:

• 18 to 89 years of age
• Be a health care provider who cares for any type of brain tumor
• Ability to communicate in English
• Willingness to participate in a 30-60 minute focus group

Exclusion criteria

• None

Trial design

27 participants in 2 patient groups

Brain Tumor Patient

Description:

A one-time focus group will be held in a quiet room for approximately 30-60 minutes until a "saturation" of themes has been identified.

Treatment:

Other: Focus Group

Health Care Provider

Description:

A one-time focus group will be held in a quiet room for approximately 30-60 minutes until a "saturation" of themes has been identified.

Treatment:

Other: Focus Group