Improving the Cognitive Accessibility of Self-reports for People With ID

Koraal

Status: Completed

Conditions: Mild Intellectual Disability; Borderline Intellectual Functioning

Treatments: Diagnostic Test: Adaptive functioning self-report questionnaire; Diagnostic Test: Adaptive functioning self-report questionnaire - adapted

Study type: Interventional

Funder types: Other

Identifiers

NCT05857592

Koraal-ABAS-Kooijmans

Details and patient eligibility

About

In the proposed study, the investigators aim to investigate whether the existing ABAS-3 self-report questionnaire is suitable to be completed meaningfully by individuals who are perceived as having mild intellectual disability (55<IQ<85) based on cognitive impairment. Based on the participants' experiences and researchers' expertise, the investigators develop a 'more inclusive' self-report version. The investigators then look at the extent to which participants indicate that they understand this version better, based on user experiences and limited psychometric research. In doing so, the investigators also compare the outcomes of the self-report and informant-report variant.

Enrollment: 20 patients

Sex: All

Ages: 18+ years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• Age 18 years or older
• Last known Total Intelligence Quotient (TIQ) 55 - 85
• Receiving support from a care organization for persons with ID.
• A care worker who knows the participant for at least a year and knows him well enough tot complete the informant version of the ABAS-3 is available.

Exclusion criteria

• Severe physical or sensory impairment limiting ability to participate.

Trial design

Primary purpose: Supportive Care

Allocation: N/A

Interventional model: Single Group Assignment

Masking: None (Open label)

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20 participants in 1 patient group

Experimental

Experimental group

Description:

Persons with Mild Intellectual Disability (MID) or Borderline Intellectual Functioning (BIF) complete the ABAS-3 in assisted form on two occasions: the original version the first time and an adapted version after a few weeks.

Treatment:

Diagnostic Test: Adaptive functioning self-report questionnaire - adapted

Diagnostic Test: Adaptive functioning self-report questionnaire