Survey on Cardiovascular Events in Patients With Metabolic Disease on Chronic Carnitine Supplementation

University of South Florida

Status: Completed

Conditions: Metabolic Disorders

Study type: Observational

Funder types: Other; NIH

Identifiers

NCT02311270

NAMDC7412

Details and patient eligibility

About

The purpose of this study is to learn about the effects of long term carnitine use in patients with metabolic disorders and its potential relationship to cardiovascular events.

Full description

This online cross-sectional survey will examine the self-reported long-term carnitine use in patients with metabolic disorders and any potential relationship to cardiovascular events.

Enrollment: 106 patients

Sex: All

Volunteers: Accepts Healthy Volunteers

Inclusion criteria

• Diagnosis of mitochondrial disease or any other metabolic disorder
• Any age group
• NAMDC or RDCRN registry participant

Exclusion criteria

• Inability to provide informed consent and complete survey
• Lack of participation in NAMDC or RDCRN registry