Sustain, A.S.P.E.N. HPN Registry 2011

Sustain, LLC of the American Society for Parenteral and Enteral Nutrition

Status: Completed

Conditions: Patients Requiring Home Parenteral Nutrition

Treatments: Other: all patients on Home Parenteral Nutrition

Study type: Observational

Funder types: Other

Identifiers

NCT01760408

SustainHPN2011

Details and patient eligibility

About

The American Society for Parenteral and Enteral Nutrition (A.S.P.E.N.) developed a Web-based registry for nutrition care launched in early 2011, initially focusing on the home parenteral nutrition (HPN) patient population. The purpose of Sustain is to collect information regarding the patients and populations who require HPN in the United States, measure outcomes associated with HPN, allow institutional benchmarking against the aggregate data, and publish the findings to improve the quality of care for patients receiving HPN. The registry is open to all sites (hospital and home based) who care for new or existing HPN patients.

Enrollment: 1,600 patients

Sex: All

Volunteers: No Healthy Volunteers

Inclusion and exclusion criteria

Inclusion Criteria:must receive PN at home -

Exclusion Criteria:patients receiving PN in long-term care or as IDPN

Trial design

1,600 participants in 2 patient groups

Home PN - pediatric

Description:

Pediatric patients (under 18) on Home PN

Treatment:

Other: all patients on Home Parenteral Nutrition

Adult patients on Home PN

Description:

Adult patients on Home PN

Treatment:

Other: all patients on Home Parenteral Nutrition