Telerehabilitation in Duchenne Muscular Dystrophy

Karadeniz Technical University

Status: Completed

Conditions: Duchenne Muscular Dystrophy

Treatments: Other: Telerehabilitation

Study type: Interventional

Funder types: Other

Identifiers

NCT05305976

KTU_FTR_AE_01

Details and patient eligibility

About

Duchenne Muscular Dystrophy (DMD) is a progressive inherited disease that affects the muscles and causes functional limitations to varying degrees. It is vital to start physiotherapy follow-ups immediately after diagnosis. Patients with DMD are among the most vulnerable groups who have problems in accessing physiotherapy services during the COVID-19 pandemic. The aim of the study was to investigate the effects of the telerehabilitation program developed to protect the physical health of patients with DMD and not to interrupt their follow-up.

Full description

Forty two patients with DMD were included in the study. 30 of them were ambulant in group 1, and 12 were non-ambulant in group 2. Physiotherapy assessments were performed blindly before the program started. According to the functional levels of the individuals, 2 groups were formed. 9 physiotherapists applied the tele-rehabilitation program for 24 session (3 days in a week).

Enrollment: 43 patients

Sex: Male

Ages: 5+ years old

Volunteers: Accepts Healthy Volunteers

Inclusion criteria

• Able to communicate verbally and visually
• Older than 5 years old

Exclusion criteria

• The children who had undergone any surgical operations in the past 6 months,
• Having a severe cognitive and breathing impairment
• Using mechanical ventilator continually or intermittent
• Having a febrile infection

Trial design

Primary purpose: Prevention

Allocation: Non-Randomized

Interventional model: Parallel Assignment

Masking: None (Open label)

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43 participants in 2 patient groups

Ambulant Group

Experimental group

Description:

Individuals unable to walk according to the Brooke Function Classification System

Treatment:

Other: Telerehabilitation

Non-ambulant Group

Experimental group

Description:

Individuals who can walk according to the Brooke Function Classification System

Treatment:

Other: Telerehabilitation