The Calgary Movement Disorders Advanced Care Pilot Program (ACT for PD)

University of Calgary

Status

Not yet enrolling

Conditions

Parkinson's Disease and Parkinsonism

Treatments

Behavioral: Palliative care

Study type

Interventional

Funder types

Other

Identifiers

NCT05599659

REB22-0545

Details and patient eligibility

About

The goal of this clinical trial is to analyse the effect of palliative care interventions on quality of life, patient satisfaction, carepartner burden and health care utilization patterns in patients living with parkisonism and their carepartners.

Participants will:

Receive multidisciplinary palliative care.
Answer questions related to the quality of life, patient satisfaction, carepartner burden and health care utilization patterns.

Enrollment

100 estimated patients

Sex

All

Ages

20 to 100 years old

Volunteers

No Healthy Volunteers

Inclusion criteria

Participants who have a PD diagnosis or another PDRD diagnosis (multiple system atrophy, corticobasal degeneration, progressive supranuclear palsy, or Lewy body dementia)
Participants who have moderate to high PC needs based on the Palliative Care Needs Assessment Tool (PC-NAT)
Participants who are between 20 and 100 years old

Exclusion criteria

Immediate and urgent palliative care needs. These patients will be offered appropriate services immediately
Participants who have other illnesses that could require PC e.g. metastatic cancer
Participants already receiving PC and/or hospice
Patients with a diagnosis of severe cognitive impairment (Montreal Cognitive Assessment <10). These patients will be offered appropriate services. Care partners can participate.