The Effect of Transition to Adulthood Education Program on Family Quality of Life and Perceived Stress Level

Koç University

Status: Completed

Conditions: Intellectual Disability

Treatments: Other: Transition to Adulthood Education Program

Study type: Interventional

Funder types: Other

Identifiers

NCT05587647

Eyşan Umac

Details and patient eligibility

About

Negative emotions experienced during life processes and the burden of caregiving affect the quality of life of parents. It has been found that parents who care for their children with intellectual disability (ID) for a long time have difficulties in coping with stress and their quality of life is adversely affected. However, families play a key role in maintaining the care of their children with ID, so it is very important that parents are supported in the matters they need.

Full description

Mothers are generally the people who take on a large part of the burden of care for their children with intellectual disability (ID) in the family and are most affected by the negativities brought by the conditions. Providing support to mothers for the care and future planning of their children who have just passed into adult life and for their future planning is important both in terms of maintaining family well-being and creating positive effects in the lives of individuals with mental disabilities.

With this study, it is aimed to increase the quality of life of mothers and to reduce perceived stress levels with the training (YEGEP) modules to be given for the changing care needs of individuals with ID who have reached adulthood or are in transition. In addition, it is expected that the health risks of young adults with ID will be determined at an early stage, and their health will be improved and protected.

Enrollment: 33 patients

Sex: Female

Volunteers: Accepts Healthy Volunteers

Inclusion criteria

• Whose child is registered with the disability center,
• Have a young adult child between the ages of 20 and 35 with moderate and severe mental disabilities,
• Speaking Turkish and literate Turkish,
• Not visually and speech impaired,
• Mothers who volunteered to participate in the study will be included.

Exclusion criteria

• Mothers who did not volunteer to participate in the study and were illiterate in Turkish were not included in the study.

Trial design

Primary purpose: Supportive Care

Allocation: Randomized

Interventional model: Parallel Assignment

Masking: Single Blind

---

33 participants in 2 patient groups

Experimental: YEGEP group/Intervention

Experimental group

Description:

Mothers will be informed about the program and invited to work. In the phone call, information will be given about the purpose, duration, requirements and volunteering of the study. The planned training schedule will be applied to these mothers.

Treatment:

Other: Transition to Adulthood Education Program

Control group

No Intervention group

Description:

Annual care trainings are given to parents at the disabled center where the study will be conducted. There is no similar practice to these mothers on the same dates. place in the control group