The Experiences of People Who Live With Glanzmanns Thrombasthenia.

H

Haemnet

Status

Completed

Conditions

Glanzmann Thrombasthenia

Treatments

Other: survey and interview

Study type

Observational

Funder types

Other
Industry

Identifiers

NCT05315232
Glanzmanns 360

Details and patient eligibility

About

To understand the lived experiences of people with Glanzmanns Thrombasthenia

Full description

A qualitative study of people with Glanzmanns Thrombasthenia including an on-line survey, qualitative in-depth interviews and bleed diary completion.

Enrollment

122 patients

Sex

All

Ages

Under 100 years old

Volunteers

No Healthy Volunteers

Inclusion criteria

Clinical diagnosis of congenital (inherited) Glanzmanns Thrombasthenia

Exclusion criteria

Acquired Glanzmanns Thrombasthenia

Trial design

122 participants in 2 patient groups

Qualitative assessment
Description:
Survey (using validated quality of life assessment questionnaires) and one to one interviews of people and family members living with Glanzmanns Thrombasthenia
Treatment:
Other: survey and interview
Bleed diary
Description:
Daily bleed diary completion over 12 weeks
Treatment:
Other: survey and interview

Trial contacts and locations

1

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Central trial contact

Kate Khair, PhD; Simon Fletcher, MSC

Data sourced from clinicaltrials.gov

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