The Individual and Family Self Management Theory Based Epilepsy Education Program's Effectiveness

KTO Karatay University

Status: Completed

Conditions: Quality of Life; Epilepsy; Seizure; Self Management

Treatments: Behavioral: Epilepsy Education Programme

Study type: Interventional

Funder types: Other

Identifiers

NCT04822662

KaratayUh01

Details and patient eligibility

About

The aim of the study; to determine the effect of education program given to adolescents diagnosed with epilepsy and their parents based on Ryan and Sawin's individual and family self-management theory, on adolescents 'attitudes towards disease, self-efficacy, quality of life and parents' nurse-parent support levels.

Full description

In addition to the expected effects of epilepsy on children, the course of the disease and the course of the child's life will change as the duration of life with the disease increases. In epilepsy, it is necessary to develop self-management behaviors in order to facilitate adaptation to the disease, to encourage seizure control and to increase the quality of life. Regular repetition of the trainings created within the framework of a certain plan to improve self-management behaviors is one of the recommended steps to strengthen the individual with chronic disease in the disease process. This randomized controlled study including aged 12-18 adolescents with a diagnosis of epilepsy, monotherapy, mental retardation without cerebral palsy, and no secondary disease and their parents. However, there isn't enough published research examining the effect of education program given to adolescents diagnosed with epilepsy and their parents based on Ryan and Sawin's individual and family self-management theory, on adolescents 'attitudes towards disease, self-efficacy, quality of life and parents' nurse-parent support levels.

Enrollment: 36 patients

Sex: All

Ages: 12 to 18 years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• Having a diagnosis of epilepsy for at least 6 months,
• Being in the age range of 12-18 years,
• Cerebral palsy, attention deficit, lack of mental retardation, except for a different physical or epilepsy,
• Receiving monotherapy treatment for epilepsy
• To be able to communicate in Turkish

Exclusion criteria

• Cerebral palsy, attention deficit, mental retardation other than epilepsy,
• Patients who are over the age of 18 or who switch to an adult care program,
• Not being open to communication and cooperation, not taking polytherapy
• Adolescents not continuing the monitoring phase or wanting to stop working at any stage,
• Prior history of seizures due to screen exposure

Trial design

Primary purpose: Supportive Care

Allocation: Randomized

Interventional model: Parallel Assignment

Masking: Single Blind

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36 participants in 2 patient groups

Experimental Group: Epilepsy education program

Experimental group

Description:

The training prepared for epilepsy will be held in 3 main modules and 5 sessions with two weeks intervals. Each session will last 25 minutes. Trainings will be given to adolescents and their parents online.

Treatment:

Behavioral: Epilepsy Education Programme

Control Group

No Intervention group

Description:

The control group will receive standard epilepsy treatment without any training intervention. The group did not receive any other intervention.