The Life Experience of Young Women (Age 18-38) Who Live With Congenital Heart Disease

Hillel Yaffe Medical Center

Status: Unknown

Conditions: Women With Congenital Heart Diseases

Treatments: Other: Observation and Interviwe

Study type: Observational

Funder types: Other

Identifiers

NCT02909543

51-2016

Details and patient eligibility

About

This research will focus on young women between the ages of 18-38 who underwent a heart operation and their life experiences. This research will focus on these life events and the paradigm of these women being raised as "heart sick," and consequently lacking self-esteem (Frigiola, Bull, & Wray, 2014; Hickey et al., 2012). Most qualitative studies focusing on the quality of life compare men and women, completely ignoring women's body image and the experience of womanhood (Hickey et al., 2012; Hövels-Gürich et al., 2007; Sarikouch, et al., 2013). This study aims to focus on women's stories about their life experiences and the influence of surgery(ies) on their daily life using an the qualitative phenomenological approach.

Enrollment: 15 estimated patients

Sex: Female

Ages: 18 to 38 years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• Atrial septal defect or ASD,
• Ventricle septal defect or VSD,
• Tetralogy of Fallot or TOF
• Translocation of great arteries or TGA
• underwent heart operation
• Hebrew speakers that are able to understand the meanings of the questions and tell their life stories.

Exclusion criteria

• Non Hebrew speakers
• Did not underwent heart surgery.