The Living Experience of Hong Kong Chinese Adolescents With CHD.

The University of Hong Kong (HKU)

Status: Completed

Conditions: Quality of Life; Chinese; Adolescent; Congenital Heart Disease; Psychological Well-being

Study type: Observational

Funder types: Other

Identifiers

NCT03677232

UW 17-290

Details and patient eligibility

About

This study aims to explore the impacts of CHD and its limitations on adolescents and the living experience of adolescents living with CHD.

Hong Kong Chinese adolescents with CHD are having reduced psychological well-being and quality of life than their healthy counterparts. Qualitative study is therefore needed to explore how CHD may impact on the adolescents' psychological well-being and quality of life.

Full description

A qualitative study was adopted. Purposive sampling of 30 adolescents with CHD were done. Thematic analysis was used for data analysis. The participants unfold negative impacts of CHD and its treatments, and the challenges they were facing with their relationship with others.

Enrollment: 30 patients

Sex: All

Ages: 12 to 18 years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• Hong Kong Chinese adolescents
• aged 12 to 18
• able to read and write Chinese
• attending outpatient clinic of Department of Pediatric Cardiology

Exclusion criteria

• adolescents with non-structural heart disease
• with developmental delay or comorbid medical conditions

Trial design

30 participants in 1 patient group

Hong Kong Chinese adolescents with CHD

Description:

Hong Kong Chinese adolescents with CHD aged 12-18 who are able to read and write chinese