The Right to be Forgotten in the AYA Population: Patients' Experience and Perspectives (Diritto All'Oblio)

Centro di Riferimento Oncologico - Aviano

Status: Enrolling

Conditions: Oncologic Disorders

Study type: Observational

Funder types: Other

Identifiers

NCT06229535

CRO-2023-21

Details and patient eligibility

About

Cancer survivors experience a form of social discrimination that is described in numerous areas such as private life, educational and work paths and the achievement of personal goals. Starting from this scenario, more and more national legislative initiatives are emerging to reconcognize the right to be forgotten, defined as the right not to have to report one's, resolved, oncological disease in contact with institutions such as insurance companies, banks or others. The issue of the right to be forgotten is current and new, primarily in the AYA (adolescents and young adults) population. The purpose of this study is to explore and describe the experience of adolescents and young adults affected by previous oncological disease with respect to the issue of the right to be forgotten. In particular, focusing on:

• awareness (knowledge of the issue);
• significance attributed and subjective perception;
• implications/fallouts perceived or experienced on one's present and future history.

Full description

Cancer survivors experience a form of social discrimination that is described in numerous areas such as private life, educational and work paths and the achievement of personal goals. Starting from this scenario, more and more national legislative initiatives are emerging to reconcognize the right to be forgotten, defined as the right not to have to report one's, resolved, oncological disease in contact with institutions such as insurance companies, banks or others. The issue of the right to be forgotten is current and new, primarily in the AYA (adolescents and young adults) population. The purpose of this study is to explore and describe the experience of adolescents and young adults affected by previous oncological disease with respect to the issue of the right to be forgotten. In particular, focusing on:

awareness (knowledge of the issue); significance attributed and subjective perception; implications/fallouts perceived or experienced on one's present and future history.

Enrollment: 60 estimated patients

Sex: All

Ages: 20+ years old

Volunteers: No Healthy Volunteers

Inclusion and exclusion criteria

Inclusion Criteria:

• Age at diagnosis between (or equal to) 15 and 39 years;
• patients not in active phase of treatment;
• at least 5 years elapsed since diagnosis;
• comprehension and written expressive ability of the Italian language.
• subscription informed consent to the study.

Exclusion Criteria: NA