The Struggle That Is Phenylketonuria : What Do The Patients and Caregivers Suffer From

Hacettepe University

Status

Completed

Conditions

Psychological Well-Being

Life Stress

Caregiver Burden

Treatments

Other: parenting stress index, Zarit burden scale, Rosenberg self esteem scale, stait trait anxiety inventory, struggles and difficulties questionnaire

Study type

Observational

Funder types

Other

Identifiers

NCT06280261

GO20/296

Details and patient eligibility

About

Objective: To assess the stress levels and life hardships of phenylketonuria patients and their parents.

Full description

Study Design: Between January 2020 - June 2020, a total of 156 phenylketonuria patients and their parents who arrived for their regular examinations were included. Parents were asked to fill the parenting stress index, Zarit burden scale and the strengths and difficulties questionnaire and children over the age of eleven were asked to fill the Rosenberg self-esteem scale, the stait-trait anxiety inventory and strengths and difficulties questionnaire.

Enrollment

156 patients

Sex

All

Ages

6 months to 35 years old

Volunteers

No Healthy Volunteers

Inclusion criteria