Therapeutic Education Using an Internet Application in Hereditary Ichthyosis (e-ETPichtyose)

Toulouse University Hospital

Status: Completed

Conditions: Ichthyosis

Treatments: Other: Therapeutic patient education program

Study type: Interventional

Funder types: Other

Identifiers

NCT03641261

RC31/16/8765

Details and patient eligibility

About

The main purpose is to evaluate the feasibility (global use) of a therapeutic patient education program using a specific web application in patients with hereditary ichthyosis.

Enrollment: 42 patients

Sex: All

Ages: 15 to 60 years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• Patient with hereditary ichthyosis, according to the classification established during the 2009 consensus conference
• Who has given his informed consent form
• Who is affiliated to a social security system

Exclusion criteria

• Patient who has already participated in a therapeutic patient education program for the hereditary ichthyosis
• Unable to connect or use a computer tool
• Impossibility to be present at the only face-to-face session
• Patient who is not available for the collective educational session
• Patient with little or no motivation to follow a therapeutic patient education program (motivation evaluated by the educational team by phone call before inclusion)
• Patient not mastering the French language
• Person under legal protection (guardianship, curators or safeguard of justice)

Trial design

Primary purpose: Supportive Care

Allocation: N/A

Interventional model: Single Group Assignment

Masking: None (Open label)

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42 participants in 1 patient group

Therapeutic Patient Education program

Experimental group

Description:

All included patients will follow a Therapeutic Patient Education program dedicated to the hereditary ichthyosis and using a web application, WebIchtyose

Treatment:

Other: Therapeutic patient education program