TRAJ : Transition in Rheumatology, From Adolescence to Adulthood

University Hospital of Bordeaux

Status: Not yet enrolling

Conditions: Transitional Care

Treatments: Other: Self-questionnaire : satisfaction and quality of life; Other: Self-reported questionnaire : educational or professional

Study type: Interventional

Funder types: Other

Identifiers

NCT07079943

CHUBX 2025/007

Details and patient eligibility

About

This study evaluates the impact of the CAPAdJA transition support program on care continuity for young patients with chronic rheumatic diseases at Bordeaux University Hospital. The primary objective is to compare the proportion of patients lost to follow-up six months after the transition consultation between those who benefited from CAPAdJA and those who did not.

Full description

The transition from pediatric to adult healthcare is a critical period for young patients with chronic diseases. This period carries risks such as disruptions in continuity of care, worsening symptoms, and a deterioration in quality of life. To address these challenges, transition support programs have been developed, including the CAPAdJA program, implemented in 2017 at Bordeaux University Hospital. While such programs seem to play a key role in structuring the transition process, their impact on care continuity and patient satisfaction remains poorly documented. The primary objective of this study is to assess the impact of the CAPAdJA program on the proportion of young patients lost to follow-up. Patients included six months after the pediatric-to-adult rheumatology transition consultation realized in the context of programm CAPADJA or not. The secondary objectives are to provide an overview of the medical and demographic characteristics of the transition in rheumatology at Bordeaux University Hospital and to analyze the impact of CAPAdJA on patient satisfaction and quality of life. Demographic and medical data will be collected using Dxcare. Then, patients will be categorized into two groups: those who benefited from the CAPAdJA support program and those who did not. Investigators will then compare the proportion of patients lost to follow-up in each group, as well as their responses to self-administered questionnaires focusing on quality of life and patient satisfaction.

Enrollment: 100 estimated patients

Sex: All

Ages: 18+ years old

Volunteers: No Healthy Volunteers

Inclusion criteria

• Patients who benefited from a pediatric-to-adult rheumatology transition consultation at Bordeaux University Hospital between 2017 and 2024
• Patients over 18 years old at the time of completing the self-administered questionnaire.

Exclusion criteria

• Patients who do not speak French
• Patients who have refused to participating

Trial design

Primary purpose: Other

Allocation: N/A

Interventional model: Single Group Assignment

Masking: None (Open label)

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100 participants in 1 patient group

CAPAdJA group and Non-CAPADJA group

Other group

Description:

Patients who benefited from pediatric-to-adult rheumatology transition consultation at Bordeaux University Hospital between 2017 and 2024 (Patients included 6 months after the pediatric-to-adult rheumatology transition consultation realized in the context of programm CAPADJA or not)

Treatment:

Other: Self-reported questionnaire : educational or professional

Other: Self-questionnaire : satisfaction and quality of life